Is the Term Patient Counterproductive in Advocacy?
“We need to support the journey from passive patient to patient leader. “ - Annette McKinnon How do you include the voice of people who live with illness — chronic or otherwise (patients) —in the decisions that affect how healthcare is provided? And how do you do that without these voices being used and subsumed by the professionals who work in healthcare? Last week, Annette had a terrific rant about that particular topic, focusing especially on how the terminology that people who live with illness use to describe themselves eventually and inevitably becomes hijacked by professionals. She asks “ Where is the attitude that patients are part of the team in healthcare, that we are partners? Why are we always asked to participate inside a pre-determined frame? When will we see co-design of new policies, and ultimately co-production?” All excellent questions that got me thinking. And when she ended with the rousing call to action that started this post, I had to