5 Things I’ve Learned from RA



#RAblog is a seven day event from September 21-27, 2015. The brainchild of Rick Phillips, the goal of this week is to raise awareness about rheumatoid arthritis and build community. Up on over to the RADiabetes site to learn more about #RABlogWeek and find links to other participants.For Day 4 of #RABlog Week, we were asked to share 5 things we’ve learned from RA. Here are mine.

Living with juvenile arthritis or, as I simply call it now (because it’s easier) RA, for 49 years has taught me endless lessons. Some of them good, some of them the kind that you’d rather live without. All of them have helped me grow.

Crying doesn’t change anything. When I was 11 years old, I was admitted to a rehab hospital on the Danish coast in the hope that it would do something for my JA. I hated every minute of it. It was an awful place and I cried for three weeks. It got me no comfort from the staff, and my deep unhappiness did not factor into the decision about how long I was staying (that time, it was three months). Eventually, I stopped crying. It didn’t mean I hated it any less, merely that that I adapted to my environment. Once I stopped crying, I got better treatment from the staff.

Sometimes, pain is worth it. A big part of managing RA is pacing yourself, working within your limits, and avoiding pushing yourself so far that you hurt for days (or weeks). It’s important to know when to do that and when to throw caution to the wind. Sometimes, being there for others, or having an adventure is worth the pain later.

Life happens anyway. When a curveball comes right at you, it’s normal to feel like the world should stop. It won’t, though. It will keep right on moving and if you hide too long, it’ll go past you. The best way to recover and to live well with whatever challenges you have is to find a way to keep putting your life first, and the challenges/RA second. Put your focus where the action is.

You can be happy even when you live with lots of limitations. I spent a great deal of my life being very sad. Which is not say I didn’t laugh or have fun. Underneath it all, it always felt as if my RA and my disability prevented me from finding happiness. Then I came close to dying in a big RA flare, a miracle medication gave me a second chance, and I discovered that what makes you happy is recognizing the joy in the small moments of your everyday. No matter how much pain you’re in, if you can find a way to have at least a one moment in every day when you truly lived, rather than merely existed, you will be happier.


I am thankful to RA. In so many ways, RA has been a gift to me. People look at me funny when I say that, but it’s true. RA has taught me resilience, the knowledge that I can cope with almost anything. My life and my self are the products of everything that has happened in the past 50-something years, both the good and the bad, and I like the end result. If I had to do it all over again, I’m pretty sure I would choose to have RA.
  

Comments

Rick said…
Lene: As I said on twitter your blogs are getting better each day. Wow, amazing. I love the picture.

rick
Really lovely post Lene. xx
An insightful post. What really spoke to me was "Put your focus where the action is". When we put the focus on RA we forget about important things in life. Thank you
Linda Perkins said…
I can't begin to tell you how much I love this post! It is all so very true, from "Crying doesn't help" to "You can be happy even when you live with lots of limitations." When I was diagnosed with RA, I was like so many of us - fearful and focused on the pain. A year later, I too am grateful. My post recent post on my blog is called "The Gift of Suffering" which I know many people will not read because they can't understand how we can actually receive blessing from pain, but I get the idea that you do (based on your last point). I invite you to read and comment on that article (http://springsight.blogspot.com/2015/09/gift-of-suffering.html) and I would also love to include a link to your page in the "Helpful Resources" section of Spring Sight (http://springsight.blogspot.com/p/helpful-resources.html). Let me know if that's OK.
Blessings to you, Lene!