Farber’s Disease: Could Your Child’s Juvenile Idiopathic Arthritis Be Misdiagnosed?
Joint inflammation or contractures. Nodules (small lumps under the skin or in other tissues). A weakened or hoarse voice. Children with these symptoms may have been diagnosed with juvenile idiopathic arthritis (JIA) or other types of juvenile arthritis . But do they actually have JIA or do they have Farber’s disease? An equine digression When you hear hoofbeats, think horses, not zebras. This is an adage in the medical world that encourages doctors to not wander off exploring rare and esoteric reasons for a patient’s symptoms. Because most of the time, that hoof beat of a rash likely isn’t the plague, the joint pain more likely a type of arthritis than the bends (especially if the person has never scuba dived) and you get the picture. But once in a while, it actually is a zebra. And even if it’s first identified as a horse, eventually, the stripes come through. It took five years of my parents running around to different doctors before one finally recognized that I had
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I used th eat everything and never gain a pound, lost all my gained pregnancy weight in 6 months
I didn’t think I was prideful, but now it’s really evident. Been on methotrexate and placquenl for 10 years maxed out
Then they added humera which wasn’t effective then rhemicaid. I was working 12-13hour shifts as a nurse full time. Gained 46 lbs first year and then another 25 last November , can not get it off , I look very Cushingne , I express my concern to my docttor and he says sorry have you tried weight watchers? 🙄
Never weight over 119 since this journey and I would appreciate any advice,I’ve cut out sweets, bread, milk and most simple carbs no luck . Getting my shoulder fixed Thursday and hope to start exercising again . I appreciate all the support you give each other , you think your alone then you find these new friends waiting to help bless you all. I’m a nurse which makes me have sometimes unrealistic goals for my self but I’m getting better at saying no .