I'd like to introduce you to the paperback edition of Your Life with Rheumatoid Arthritis. To differentiate this from the ebook edition, we call it the Book Book.
In unguarded moments, I call it My Preciousss.
It's got an incredibly beautiful cover by Dan Handler. The man does magic, transitioning an e-book cover into a wrap-around Book Book cover that has flow and cohesion.
Publishing a book requires an endless number of decisions, one of which was about the font we should use. We needed to find one that happened in the background, making the text easy to read, yet fit the book and me equally. We finally narrowed it down to a couple of options, one of which was called Minion Pro. I wanted to use it just for the name alone, but it also happens to be the one that works the best. This tickles me to no end.
Once we found the font, The Boy set to formatting the interior. E-book formatting doesn't work in Book Book edition, so we had to rework it substantially. David did magic, achieving subtle differences that makes it look attractive, yet easy to read
In February, my lifelong dream of having a book with my name on it came into being when the book was published as an e-book. It was overwhelming and joyful. Holding a physical copy of my book was a completely different experience. For a book nerd like myself, it was indescribable.
The Book Book is available on CreateSpace, Amazon US and Amazon UK.
The Seated View
Opinionated ramblings about almost everything
Friday, May 24, 2013
Thursday, May 23, 2013
The Quest for an RA Spokesperson: Looking for Our Jolie
One of the biggest barriers to creating effective awareness about RA is the lack of an icon who can personify the disease (and it wouldn't hurt if they were sexy, too). This week on HealthCentral, I mused on the search for a spokesperson:
"RA needs a spokesperson. Someone in the public eye. Someone who is respected and admired. We need someone to whom people will pay attention, someone who can in one moment teach the world about RA.
Last week, Angelina Jolie did that for breast cancer. She shared her story about being one in a fraction of women who have a faulty gene which greatly increases their risk of developing breast cancer. Her courage in coming forward didn't just create awareness about this gene, but also made a lot of women decide to be more vigilant about mammograms. On top of that, Jolie also spoke about the financial barriers that may prevent women from getting potentially life-saving tests. The story went viral, crossing boundaries between news and entertainment media. Everyone were talking and writing about it. Of all the roles she's inhabited, this is arguably the most badass!"
You can read the rest of that post here.
"RA needs a spokesperson. Someone in the public eye. Someone who is respected and admired. We need someone to whom people will pay attention, someone who can in one moment teach the world about RA.
Last week, Angelina Jolie did that for breast cancer. She shared her story about being one in a fraction of women who have a faulty gene which greatly increases their risk of developing breast cancer. Her courage in coming forward didn't just create awareness about this gene, but also made a lot of women decide to be more vigilant about mammograms. On top of that, Jolie also spoke about the financial barriers that may prevent women from getting potentially life-saving tests. The story went viral, crossing boundaries between news and entertainment media. Everyone were talking and writing about it. Of all the roles she's inhabited, this is arguably the most badass!"
You can read the rest of that post here.
Labels:
HealthCentral
Tuesday, May 21, 2013
The Annual Tulip Walk - for Beth
This one's for Beth. She often challenged her friends and readers to get out to enjoy life. Since so many of us live all over the place, we are not able to be there for her memorial. Someone had the idea that on a particular day, we should all get out and do something in her name. Linda suggested we do it on May 19, which would have been Beth's 43rd birthday. I don't have a corset or anything with skulls(the suggested attire), but I do have a camera and flowers in my neighbourhood.
Every year, the gardeners who take care of the 18th-century garden in St. James Park plant a sea of tulips and every year, they're a different color. Part of the excitement of spring is waiting to see what colour they'll be this year. Some years are better than others and that certainly includes 2013. I mean, will you look at this!
They look like small globes of captured sunlight.
Just on the other side of the bed, I found this blazing away
At the front of the church, they've chosen a different color. I'm not thrilled to bits with this one — it's like it can't quite decide which colour it wants to be — but I love seeing it up against the old wall of the cathedral
Had to go see the beautiful white and purple tulips once more before I moved on. I wasn't the only one
A bit further east, there's an area by a beautiful fountain where someone else has been quite unrestrained in decorating with tulip bulbs. I had shots of these last year, too — they look like faerie ballerinas. I wanted to see what my new camera could do with them
It certainly captures red well, something my previous camera had some trouble with
Found this heavy triple-layered bloom resting its head, no doubt tired of all the dancing going on around it
am I the only one hearing Tchaikovsky?
There was another row of dancers, dressed like creamsicles to stand out a bit
At the very end, I found this beauty.
Thank you, Beth.
Every year, the gardeners who take care of the 18th-century garden in St. James Park plant a sea of tulips and every year, they're a different color. Part of the excitement of spring is waiting to see what colour they'll be this year. Some years are better than others and that certainly includes 2013. I mean, will you look at this!
They look like small globes of captured sunlight.
Just on the other side of the bed, I found this blazing away
At the front of the church, they've chosen a different color. I'm not thrilled to bits with this one — it's like it can't quite decide which colour it wants to be — but I love seeing it up against the old wall of the cathedral
Had to go see the beautiful white and purple tulips once more before I moved on. I wasn't the only one
A bit further east, there's an area by a beautiful fountain where someone else has been quite unrestrained in decorating with tulip bulbs. I had shots of these last year, too — they look like faerie ballerinas. I wanted to see what my new camera could do with them
It certainly captures red well, something my previous camera had some trouble with
Found this heavy triple-layered bloom resting its head, no doubt tired of all the dancing going on around it
am I the only one hearing Tchaikovsky?
There was another row of dancers, dressed like creamsicles to stand out a bit
At the very end, I found this beauty.
Thank you, Beth.
Labels:
Photography
Friday, May 17, 2013
Juvenile Arthritis, Blindness and Living with Joy: An Interview with Joy Ross
I love my job with HealthCentral for many reasons. One of them as I get to talk to a lot of really interesting people. A few weeks ago I met Joy Ross — a wonderful, inspiring and positive woman. She was a joy to interview and very graciously shared her story:
""I am happier without sight than when I could see."
Joy Ross is 36, lives just outside Portland, Oregon. She has been happily married for 12 years to her husband George and the mother of two beautiful daughters, Isabella (10) and Georgianna (7). Joy has had juvenile arthritis (JA) since she was three years old. As a child, her disease was primarily expressed through uveitis, an inflammation of the eyes. Joy had her first cataract surgery at age 5, but as she grew up at a time when there were no treatments for JA and RA, her sight got worse as the years went on. When she was in grade 7, the JA spread to her joints."
You can read the rest of the interview here to find out why she's happier now than she's ever been before.
""I am happier without sight than when I could see."
Joy Ross is 36, lives just outside Portland, Oregon. She has been happily married for 12 years to her husband George and the mother of two beautiful daughters, Isabella (10) and Georgianna (7). Joy has had juvenile arthritis (JA) since she was three years old. As a child, her disease was primarily expressed through uveitis, an inflammation of the eyes. Joy had her first cataract surgery at age 5, but as she grew up at a time when there were no treatments for JA and RA, her sight got worse as the years went on. When she was in grade 7, the JA spread to her joints."
You can read the rest of the interview here to find out why she's happier now than she's ever been before.
Labels:
HealthCentral
Thursday, May 16, 2013
4 Years
Photo by Janne/TinkMama
Four years ago today, The Boy and I finally realized what had been blatantly obvious to everyone else for several months: that we belong together. It was the best decision I've ever made— every day since has been filled with love and laughter. David is everything I've ever dreamed of in a partner and then some.
I am a very lucky woman.
Labels:
Love
Monday, May 13, 2013
A Smack Upside the Head
"How do you know when you're stressed?" Marianna asked this in her most recent giveaway (g’ahead, click and enter, it's open until May 19).
It turns out that my answer is I don't.
It's been pretty obvious — even to me — that things have
been very busy for a long time around here. My level of activity was already
fairly up there and then the book came out. Which lead to a blog tour - exciting, fun and wonderful, but also a fair amount of work. There was
getting the manuscript ready for the paperback version, the opportunity to
write for CreakyJoints — also exciting and wonderful — planning for May’s
Arthritis Awareness Month on RAHealthCentral, exciting and interesting planning
going on at Show Us Your Hands!, several community projects that were also very
interesting, I started writing Book Two in the Your Life with RA series and I
could go on. Won't, though. It's stressing me out just to think about it again.
Suffice it to say that it all became just a series of tasks that had to be
done, instead of projects that gave me joy.
It's funny how when the stress reaches a certain level,
you don't notice it's there. Well, you notice that your life has become pretty
miserable, but you don't associate it with burning through your energy at the
speed of light. All I knew was that I woke up tired every day and by the time
the day was over, I was so exhausted I wouldn’t as much fall as plummet into
sleep. The biweekly B12 shots that used to turn me into an energizer bunny only
enabled me to maintain, pain levels were increasing to the point that my right
shoulder was starting to show signs of the kind of flare that would bench me
for weeks. I have plans to take some time off in August and was making jokes
about "if I make it that far," only it wasn't really a joke.
Everything felt urgent, every day I was convinced that if I didn't get my work
done, the world would end. And worst of all, although I was doing a lot of
writing, I wasn't having fun. In fact, I was downright crabby. And still,
somehow, I didn't clue in.
Thankfully, others noticed.
A week ago, I was having a chat with RA Guy about something
else entirely. Before I knew it, it had turned into a very loving, gentle and
effective smack upside the head. My head, to be specific. He reminded me that
there is no rush with producing the next book. That in fact I haven't taken
time to really enjoy having a book.
Let me rephrase that: Having! A! Book! Here I am, my lifelong dream has been realized and I'm too busy to appreciate it. Too busy to let it bloom. Too busy focusing on what happens next to pay attention to what's happening in the present. And in the process, I was being pummeled by my self-induced pace.
Let me rephrase that: Having! A! Book! Here I am, my lifelong dream has been realized and I'm too busy to appreciate it. Too busy to let it bloom. Too busy focusing on what happens next to pay attention to what's happening in the present. And in the process, I was being pummeled by my self-induced pace.
I just finished David Sedaris’ latest book
and something he
mentioned in one of the essays stuck in my head. Someone had been to a seminar
on becoming successful, during which the participants were asked to imagine a
stove with four burners, representing family, friends, health and work. They
were then told that in order to be successful at any one of these aspects in life, you have to turn off one of the others.
In order to be very successful, you have to turn off two. That’s fairly
thought-provoking.
In the last year or two, as my work load has increased, I’ve turned off the friend burner. Not entirely — perhaps it's more accurate to say that I turned it down — but there's only so much of me to go around. Blessedly, many of my friends have been in the same situation, so the shrinking of the friend space wasn't always only on my end. Sometimes it was, though. More recently, I seem to have turned off the health burner. And that's very definitely a no-no when you have RA. In retrospect, I wonder if my months-long simmering flare might be connected to this.
In the last year or two, as my work load has increased, I’ve turned off the friend burner. Not entirely — perhaps it's more accurate to say that I turned it down — but there's only so much of me to go around. Blessedly, many of my friends have been in the same situation, so the shrinking of the friend space wasn't always only on my end. Sometimes it was, though. More recently, I seem to have turned off the health burner. And that's very definitely a no-no when you have RA. In retrospect, I wonder if my months-long simmering flare might be connected to this.
As Eduardo was talking, I started crying. Not out of
frustration or hurt feelings, but from relief. With every word he said, it was
like he removed another set of blinders from my eyes and I could see the
insanity that my life had become. I could see how far from grounded I was and
how far I'd come from honouring the gift of my second go at life. Sure, busy is
good. But the kind of busy that stops you from feeling joy? That's not the point
of living, is it?
There is no rush. This is my journey, not someone else's. It
is up to me to make it something uniquely mine, something that respects and
reflects all of who I am, not just the part that thinks I'm invincible.
So I've stepped away from writing Book Two. It needs to
percolate some more and I need to rediscover writing for the joy of it. I need
to create some mental space to think, to reconnect with my friends, with who I
am and what I believe. To remember that yes, the work is important, but I can't
lose the other things that make my life joyful in the process.
A week ago, a good friend gave me the gift of perspective.
And I'm grateful.
I am exactly where I'm supposed to be.
Labels:
Joy,
RA,
Second Chance,
The Book,
Writing
Thursday, May 09, 2013
Spring!
I'm always a little startled by the suddenness of Canadian spring. Last Wednesday, I was wearing socks and winter sweaters and two days after that, it was warm enough for bare feet, T-shirts and shorts. Not that I wear shorts, but a lot of other people were.
Everything's a little extra sudden this year. I use the side street below my window as a measurement of how far along spring is. The hedge on the west side is the first thing in the neighbourhood to go green and means the official start of the season. The poplars on the side are the last to pop, marking the official full embrace of spring. This year, both are popping up the same time.
After such a long winter, it is nothing but joy to see green growing everywhere and flowers blooming. Naturally, I headed out with my new camera, looking forward to christening it with spring rather than winter pictures.
I started out on Sugar Beach when the willow trees were in that just-popped stage where they look like clouds of delicate green
and while I was there, I had to capture the two-toned water and the happy sails
a few days later, I went the other way, up to St. James Cathedral and found these beauties in the park
I have no idea what this is, but it looks like the flowers have mohawks
There's nothing like a spring sky
or a spring flower bed, for that matter
These look like cups of sunshine
I hung out by the fountain watching the birds and the water play
And then this guy summed up how we all feel. Spring is finally here!
Everything's a little extra sudden this year. I use the side street below my window as a measurement of how far along spring is. The hedge on the west side is the first thing in the neighbourhood to go green and means the official start of the season. The poplars on the side are the last to pop, marking the official full embrace of spring. This year, both are popping up the same time.
After such a long winter, it is nothing but joy to see green growing everywhere and flowers blooming. Naturally, I headed out with my new camera, looking forward to christening it with spring rather than winter pictures.
I started out on Sugar Beach when the willow trees were in that just-popped stage where they look like clouds of delicate green
and while I was there, I had to capture the two-toned water and the happy sails
a few days later, I went the other way, up to St. James Cathedral and found these beauties in the park
I have no idea what this is, but it looks like the flowers have mohawks
There's nothing like a spring sky
or a spring flower bed, for that matter
These look like cups of sunshine
I hung out by the fountain watching the birds and the water play
And then this guy summed up how we all feel. Spring is finally here!
Labels:
Photography,
Weather
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