Juvenile Arthritis: The Ultimate Teen Guide – A Review & Interview with Kelly Rouba

We're doing something new on MyRACentral - this week, we launched an area on the site for teens and young adults living with Juvenile Idiopathic Arthritis (when I first got it 40+ years ago, it was called Juvenile Rheumatoid Arthritis). There isn't a lot of information and meeting places for that age group out there and I'm very proud that we are creating a space for them to connect.

The launch piece is a review of a book about JIA an interview with its author:

"In the US, 300,000 children and teens live with Juvenile Idiopathic Arthritis or JIA (previously known as Juvenile Rheumatoid Arthritis), but most of the resources about the disease is geared towards parents. Until last year, when Juvenile Arthritis: The Ultimate Teen Guide (It Happened to Me) by Kelly Rouba was published."

The rest of that post is here (it's a great book) and tomorrow, I'm posting about body image, self-esteem and identity. I can't wait to see where this goes...

Comments

Post a Comment

Popular posts from this blog

Farber’s Disease: Could Your Child’s Juvenile Idiopathic Arthritis Be Misdiagnosed?

Image
Joint inflammation or contractures. Nodules (small lumps under the skin or in other tissues). A weakened or hoarse voice. Children with these symptoms may have been diagnosed with juvenile idiopathic arthritis (JIA) or other types of juvenile arthritis . But do they actually have JIA or do they have Farber’s disease? An equine digression When you hear hoofbeats, think horses, not zebras. This is an adage in the medical world that encourages doctors to not wander off exploring rare and esoteric reasons for a patient’s symptoms. Because most of the time, that hoof beat of a rash likely isn’t the plague, the joint pain more likely a type of arthritis than the bends (especially if the person has never scuba dived) and you get the picture. But once in a while, it actually is a zebra. And even if it’s first identified as a horse, eventually, the stripes come through. It took five years of my parents running around to different doctors before one finally recognized that I had...
Read more

13 Things to Know for Rheumatoid Arthritis Newbies + Facebook Live

Image
Getting a diagnosis of any type of chronic illness can throw you for loop. There is so much to know and you have so little energy. My new slideshow for HealthCentral collects 13 things you need to know as an RA newbie : "Receiving a diagnosis of rheumatoid arthritis (RA) is a moment of strange duality. On one hand, you may be relieved to finally have answers for the symptoms you’ve been experiencing. On the other, it can be incredibly overwhelming to find out you have a chronic illness. Wrapping your head around all the new factors RA brings into your life is a long-term process. Here are some of the things you need to know." See the slideshow on HealthCentral . And in case you missed it, here is the Facebook Live I did yesterday talking about this topic:   
Read more