tag:blogger.com,1999:blog-12707009.post4135217837210403647..comments2023-11-02T09:34:05.941-04:00Comments on The Seated View: Muddying the WatersLene Andersenhttp://www.blogger.com/profile/11223128667829847717noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-12707009.post-70794501167463563042013-11-14T19:45:19.580-05:002013-11-14T19:45:19.580-05:00I think I would have liked your father!I think I would have liked your father!Cathrynnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-20111345723744171992013-11-14T06:45:17.528-05:002013-11-14T06:45:17.528-05:00This is something I have a rant about every so oft...This is something I have a rant about every so often on our polymyalgia rheumatica forum! The only treatment is pred to control the symptoms but the dose needed for that (15mg/day max) is not enough to prevent giant cell arteritis developing (more like 50-60mg or more) and about 1 in 6 patients with PMR will go on to develop it. It may have been GCA that was ringing bells with your doc as the symptoms are similar-ish.<br />Anyway - I have seen patients who have lost vision for several minutes asking on the forum what they should do! Er - get thee to a doctor NOW! Or, over and over, symptoms of atrial fibrillation or other BP/cardiac stuff are simply put down "to the pred". <br />There are a few nasties that we with an autoimmune disorder are at greater risk of - we need to know and watch. But I still have to have a rant about "putting it all down to pred"!!Eileenhttps://www.blogger.com/profile/02684985554953836607noreply@blogger.comtag:blogger.com,1999:blog-12707009.post-69048620959700561382013-11-13T14:52:49.035-05:002013-11-13T14:52:49.035-05:00"Because if you called in sick or saw a docto..."Because if you called in sick or saw a doctor every time something weird happened, you might as well quit your job and take up permanent residence at the nearest hospital." <br /><br />So true! I have to laugh at some of the "see your doctor if" advice that I read. I don't think so! Otherwise, post-fibro-diagnosis, I've had to redefine when it's time to go to the doctor- if the problem is new and different *and* doesn't go away after a couple days it's probably time. I'm good with that. What I don't have is a very good gauge of how *severe* the new & different thing is. Oh well, you do the best you can!Adriennehttps://www.blogger.com/profile/17916355206139673025noreply@blogger.com