tag:blogger.com,1999:blog-12707009.post2398239447576041216..comments2023-11-02T09:34:05.941-04:00Comments on The Seated View: Identity CrisisLene Andersenhttp://www.blogger.com/profile/11223128667829847717noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-12707009.post-80241742763092901712011-02-20T13:05:57.000-05:002011-02-20T13:05:57.000-05:00<span>Very nice blog, when you have a time p...<span>Very nice blog, when you have a time please visit our shop in: www.hyppiechic.etsy.com<br /><br />Thanks Regards <br /><br /><br />Joao & Sonia <br />Hyppiechic Team <br /></span>Hyppiechicnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-61437694368970323732011-02-18T19:02:39.000-05:002011-02-18T19:02:39.000-05:00Oh hear ya!
It's not so much the label that ...Oh hear ya!<br /><br /> It's not so much the label that I have a problem with as that fact your not allowed to have several at once and let them ALL be you. <br /><br />Some able-bodied people have a really hard time getting their head round the fact that you're not 'sick' but some days you have no spoons and others you have lots....but that doesn't mean they couldn't run out at any moment and that's why you need to take care of yourself and organize your life slightly differently to the way they do. <br /><br />This for a lot people results in hiding our 'weaknesses' to the point where we <i>make</i> ourselves sick or being honest about the bad days and being catagorised in a way that means you don't get opportunities to do things you can handle if given the assistnace to do them in your own way. It seems to be a case of do it the able-bodied way that <i>they</i> can understand or be literally INVALIDated.Gainanoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-61269315834166715162011-02-18T14:24:45.000-05:002011-02-18T14:24:45.000-05:00I've been walking through that argument for 22...I've been walking through that argument for 22 years, and I still don't know. But I love how well you thought it out loud for the rest of us. Words create meaning, and meaning is the language of the soul.AlisonHnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-86961045385309935512011-02-18T01:47:04.000-05:002011-02-18T01:47:04.000-05:00A very thought provoking post!<b>A very thought provoking post!</b>Carlnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-55190094370471804762011-02-17T22:11:22.000-05:002011-02-17T22:11:22.000-05:00I like the way nobody mentioned patient as meaning...I like the way nobody mentioned patient as meaning somebody who waits calmly...<br />Your superhero badge there is Patient Expert. Your superhero badge here is Fairy Princess Photographer Who Shows Us Tinks.<br />You know who you are. Don't let the bastards get to you.knoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-19721133207989574392011-02-17T17:34:55.000-05:002011-02-17T17:34:55.000-05:00Great questions.
And things I need to think about....Great questions.<br />And things I need to think about.<br />Recently I began a new health regimine including daily exercise with my arm bicycle.<br />It makes me feel more powerful to have my blood pressure in my own hands rather than dependent on drugs (I know how lucky I am to have caught blood pressure spikes early enough to have that choice). I also need to become a client of attendant care at some point in the future. Right now I can only get truly clean a few times a week with the help of my husband, but I am not considered to be deserving of care as far as the insurance company.<br />Yeah. Burns my knickers too.Diananoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-27975957869184887292011-02-17T15:24:53.000-05:002011-02-17T15:24:53.000-05:00Your thoughts about the way that titles change peo...Your thoughts about the way that titles change people's perception of the title-bearer really connect with me as a linguist. There was an interesting study done a few years ago (http://pss.sagepub.com/content/10/6/489.refs) which showed exactly that - that when someone was referred to by a lexicalized label, children thought of the traits associated with that label as being more stable and long-term (e.g. more definitional of who that person is, rather than simply being one of many traits associated with that person). Names really do matter. People make assumptions about other people's capacities (among many other things) based on categorization and on the traits associated with a particular category.<br /><br />That said, it is often difficult (group-internally) to decide on the best way to refer to people who see themselves as members of a group. I work with Native Californian tribes, and the folks I work with variously (and passionately) refer to themselves as Native Californians, Natives, Indians, American Indians, and Native Americans. Each of them has the individual right to choose what they should be called, and the group has the aggregate right as well (more fraught in practice than in principle, of course); that doesn't mean that everyone agrees, or thinks that they should agree. And it all changes over time as each new name accumulates associations with which a new generation doesn't want to be associated. Fascinating stuff...Jocelynnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-20222631669967205532011-02-17T12:46:46.000-05:002011-02-17T12:46:46.000-05:00I think it means you are an expert at being a pati...I think it means you are an expert at being a patient...which *to me* sounds like a choice. You choose to be a patient when you choose to go to the doctor to get advice/treatment/whatever. Just like I choose to be a shopper when I go to the grocery store. But I am *very much* not a store shopper ;) Since you have researched and practiced being a patient, you are an expert one. My SIL was an expert caregiver, when her husband had a MUDD bone marrow transplant...she battled the insurance company and won. She isn't a caregiver for someone undergoing bone marrow, anymore, because he had it, survived, got well, got off the steriods, and is now the healthiest guy I know (10.5 years post transplant!). But, at the time, being an expert caregiver was almost the most important job in her life.<br /><br /><br />Those who have cronic illnesses sort of have a choice, being a patient or a Patient. A patient is passive, sick, not really involved in their own care and choices, while a Patient is a consumer of medical services, maker of decisions and manager of their own care, with assistence from professionals. It is usually one of many titles, like Quilter, Knitter, Mother, Programmer, you name it...one may not be active in that aspect of one's life all the time, but it's always part of you, once you take it one, since it involves knowledge and skills, and you typically find yourself using skills from one aspect of life in others!<br /><br />But, as usual, it's not the term used that matters, it's the attitude of those using the term that does.<br /><br />I learned this in college, when a rough speaking, tough, odd friend came over to worry with me about a sick guinea pig, and he said, "ah, she croaked", when we realized she was dead. And I was comforted, because the *way* he said it, his demeaner, attitude, expression, etc, were all totally sweet and caring....the words though? <shudder> But from him, they were fine.<br /><br />So, from you Patient Expert is a title with honor, not *who* you are, but a responsible, sensible, useful part of you (as it would be from many fabulous Doctors I've known). From some doctors I've met (lower case to show disrespect), the term would be a total insult.</shudder>Colleen Humphreysnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-81730288418201084302011-02-17T10:52:28.000-05:002011-02-17T10:52:28.000-05:00See, to me, Patient Expert sounds fine, b/c I don&...See, to me, Patient Expert sounds fine, b/c I don't have any negative connotations with the word Patient as meaning someone subservient or subject to paternalistic patronizing attitudes. I just think of someone who's receiving treatment for XYZ who is also an expert on the subject.<br /><br />OTOH, the word "consumer" has negative connotations to me. I have a good friend who's a social worker and is constantly talking about the consumers she works with. It makes me think of consumer *ism* which to me is a bad thing and completely out of control in our society. Probably doesn't help that part of my friend's job is to take the consumers shopping, so she's actually helping the consumers consume.<br /><br />I dunno what the right answer is... and honestly I don't think most people think so hard about the semantics of it. Although maybe they should.Adriennenoreply@blogger.com