tag:blogger.com,1999:blog-12707009.post1979358945459798242..comments2023-11-02T09:34:05.941-04:00Comments on The Seated View: The Rollercoaster: A Guestpost by Kim P. MillerLene Andersenhttp://www.blogger.com/profile/11223128667829847717noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-12707009.post-8865338471814802822014-01-27T11:33:01.484-05:002014-01-27T11:33:01.484-05:00I am new to the JA community as my daughter was ju...I am new to the JA community as my daughter was just receny diagnosed at 16 months. And I have caught myself strugling between the normal now and the normal the way it used to be. I try to make life for my other two children as normal as it uses to be, but its not and it never will be again. I worry about the meds they have her on and feel bad when I deny my other children things because we simply can't fit it into the schedule or well lets face it, we simply do not have the money due to the medical bills that are never ending. I worry that my other children who are on this roller coaster with us feel left out or less important because they do not have anything wrong with them. I find myself strugling to get their school to cooperate with me. I have researched this disease till I am blue in the face and the only true, honest, and raw advice and inspiration I have recieved has come from those in the JA community blogs and facebook groups. Thank you for the raw and honest insight into what its like to have JA or be the parent of a child(ren) who have this disease!Lorinda Donohuenoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-18512090042038798112014-01-27T09:59:52.257-05:002014-01-27T09:59:52.257-05:00Took the words out of my mouth. My son was diagnos...Took the words out of my mouth. My son was diagnosed at the age of three. He is six now but we grow stronger as a family every single day! Your words truly inspire hope...Thank youJennifer B.noreply@blogger.comtag:blogger.com,1999:blog-12707009.post-88985695643127625342014-01-26T22:06:13.942-05:002014-01-26T22:06:13.942-05:00I grew up with JIA (I'm 42 now), and I can say...I grew up with JIA (I'm 42 now), and I can say that I never take a good day for granted, and don't get caught up in superficial things. I understand what's really important. I have my own kids now, and the ripple effect continues. They are now empathetic, don't take great days for granted, and enjoy the little things of just being together.Tabbytown https://www.blogger.com/profile/17899755906712887258noreply@blogger.comtag:blogger.com,1999:blog-12707009.post-50775116307677927842014-01-26T07:58:18.176-05:002014-01-26T07:58:18.176-05:00Wow . Inspiring. Spot on. I am reposting this. DiWow . Inspiring. Spot on. I am reposting this. DiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12707009.post-30312572916464765232014-01-25T22:08:36.754-05:002014-01-25T22:08:36.754-05:00So so true, I have two kids with Chronic Medical I...So so true, I have two kids with Chronic Medical Issues... inlcuding my son (30m) who has Vitamin D Resistant Ricketts and suspected JA (amongst other medical issues). Its not easy and it is a huge rollercoaster but you do learn to enjoy the "well" times and try to just get them through the not so good times.Anonymoushttps://www.blogger.com/profile/11489192121939020046noreply@blogger.com